Newspaper Article on Batten Disease

If you click on the article it will enlarge it for reading. This was published in the Concord Independent Tribune today, front page of the health and fitness section.


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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One comment on “Newspaper Article on Batten Disease
  1. Carolyn F says:

    What a lovely article. I’m a fellow Wachovian, and found you based on your note on the employee bulletin board. Your boys are lucky to have such strong parents to guide them through these hard times.

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