Soccer Weekend and May 5th Update

Jeremy closed out spring soccer season last weekend, he is always the first in line to pick up his trophies. He is so proud.

Brandon actually started a shortened soccer season with VIP soccer through AYSO. We forgot our camera, but will get pictures next weekend.

For those not on our personal email list we also wanted to update you on our upcoming fundraiser on May 5th. It’s almost here!!!!

We got great news today from Odell Sports which uses the fields that we are walking on for baseball, softball and football . They have graciously offered to open and run their onsite concessions for our event and donate the proceeds to the BDSRA. But wait, there’s more. They have games the remainder of that day and they will also donate 25% of their sales for the rest of that day to the BDSRA!!!!!!!! Thank you Odell Sports,

If you would like to donate items for auction please contact us soon to arrange pickup/dropoff of the items.

Walkers- You will be walking the perimeter of a soccer/baseball field so make sure to wear supportive shoes and keep this in mind if you are bringing strollers, you may want to bring the large wheeled type of stroller if you have one.

We are expecting another Tshirt shipment soon. Send your orders now so we can fulfill them before the 5th so you can wear them to the event. We will be selling them at the registration desk that morning if you prefer. FYI, some current orders have not been filled due to some sizes being out of stock, so hang tight if you haven’t gotten your order yet!!!!!

Finally, thank you so much for reading and being a part of our lives!!!!


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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