Back from Rochester

We got back from the BDSRA conference in Rochester late last night. Just a quick note now and I will post photos and a longer blog posting soon. We had a wonderful time meeting new families, but as we expected it was overwhelming at times. Thank you to Charlie and Wanda Leffler for being our “buddy” family, they gave us free reign but let us know that they were there if we needed them.


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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