Question of the Day

Brandon: Daddy?
Daddy:Yes bud?
Brandon: I wonder why Cubby’s tail is a question mark and not something else…….like a triangle?
Daddy: You know, I am not quite sure son.

These are the moments that I truly treasure!!!!!! In some ways I am thankful that I get to really appreciate these types of moments.

You should have seen the smile on Brandon’s face last night when he was talking about going off the starting block into the water with Ms Amy at swim lessons yesterday. It made me cry.


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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