Busy Week

Last Sunday a little kitten found us and we took her in for a few days while we found her a home. We would have loved to keep her but Brandon and Jeremy are really allergic so it was best to let her go. A friend of mine from work took Brownie. She was really a sweetheart, purred whenever you picked her up. Between the boys soccer(Brandon started up again this Sunday), the boys swimming, and my softball we have had busy nights. Also had a fun time at the Hughes’ for a cookout with some of Jeremy’s friends from preschool.
We are excited to report that the cookbook is almost complete, the printers are working on it this week and maybe into early next week and then it will go to be bound next week or the following. We appreciate Signal Graphics in Charlotte and Binders Inc in Charlotte for making this become a reality. We will let you know as soon as we get them in.
School is going well so far this year, we have an IEP meeting on Friday. Brandon is really engaged this year in a self contained classroom as opposed to the mainstream 5th grade classroom so we hope to continue. Brandon’s vision seems to be holding, although I think I have noticed a decline in seeing things below the horizon. Jeremy has had a couple of issues with his eyes recently, it may be time to take him in to the opthalmologist again. Colors are becoming harder and he struggled seeing while driving his electric four wheeler at dusk the other night. Still no major behavioral issues at this time.

Once again my family would like to thank you for your support, words of kindness and your willingness to help us. We can’t tell you how much it means to us.

One last thing before you go. We learned of yet another family in Charlotte recently diagnosed with Infantile Batten Disease, please keep this family in your prayers.

As always, thanks for reading!

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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