Consistency is important

OK, Halloween costumes have been purchased. We are not the make it yourself types. Both boys are the same thing this year as they were last year. Brandon is a ghost or character from Scream, whatever, never saw the movie. The one that kills me is Jeremy, this is the 4th time in 5 years that he has been a Red Power Ranger. Always a new costume and different generation of Power Rangers, but ALWAYS the Red Ranger.
We are getting excited about some BDSRA happenings. The 2nd annual Festival of Hope is coming up on October 20th in Raleigh, NC. 10 am – 4 pm At New Community Church
9621 Six Forks Rd. Raleigh, NC (at the intersection of I-540 and Six Forks Rd.)Danielle Lowden is putting it on and our whole family will be attending and manning the Batten Family Table. We will have our cookbooks available beginning that day. If you have preordered from me already please hang tight until after the 20th, I will begin to ship them out after this event. You can email us with questions or Danielle at
Also, mark your calendar for November 3rd from 5-8pm at the Moss Creek Clubhouse we will be having a Cookie Walk/Bake Sale. Children’s crafts and face painting will be provided along with a 50/50 cash raffle and a raffle to win a $1000 Belk’s shopping spree. Please email us at or call 704-262-9396 for more information.
For those unfamiliar with the cookie walk concept it goes like this. Purchase a box at the door and then walk through the baked goods picking what you want. Fill up the box with as little or as much as you would like as long as you can get the lid closed. We hope to have all donated baked goods to keep our costs down so let us know if you can help! We also plan on having whole pies and other items priced separately.
A big thank you to Gabrielle Carneglia of Heidi Hines Realty, our Laurie Ave neighbor, for sponsoring the event!
Also check out the front page of this blog, I have added a way to donate directly to the SE Chapter of BDSRA through Pretty neat.

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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