Cookie Walk/Bake Sale


Bittersweet news. First the good news. What a wonderful afternoon of friends, family and fellowship. Thank you to everyone who donated baked goods and came out to support us we were overwhelmed with the support! Especially considering it was a holiday weekend. Wanted you to know that we raised just over $1200.00 today and we will be submitting $500.00 of those funds to be matched by the Wachovia Foundation. So it should bring a grand total of over $1700.00 for this event! Thank you to Aramark at Wachovia CIC and Harris Teeter at Poplar Tent and Harris Rd for their donations. Thank you to the people at McCar Homes, especially Josh and Jenny for helping us today. Special thanks to the Carneglia’s and Heidi Hines Realty for everything that they did to pull this event off!!!!!! Also to Kevin and Laura Brown, Pam Barnard and Lisa Turley for volunteering their precious time to help support us. If I have missed anyone blame it entirely on me, just know that we couldn’t do it without you!

Now for the bad news, when we returned from the event and I had time to check my emails we got the horrible news that friends of ours have just received diagnosis on their second of three children. Their oldest and middle child both have juvenile Batten disease. As I sit here with tears in my eyes I am hurt, angry and above all else determined to help find a cure to beat this horrible disease. I hope that you will join me in praying for this family, nobody deserves this twice.

Also, keep Wendy in your prayers. Early Sunday morning she had a setback from her sinus surgery with a terrible nosebleed which required an ambulance ride. Thank you to Scott Askins for staying with the boys while I went to the hospital. As I write this on Monday morning she is waiting for the doctor to see her about noon today to determine next steps. Hopefully she will be coming home today.

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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