"I know son, I know"

Tonight Brandon told Wendy that he felt bad because he was too slow to keep up with the other kids at the afterschool program, today they had to send two kids back to help him. Tonight at bedtime, Jeremy told me “Daddy, I can’t see things that are far away.” What could I say other than, “I know son, I know.”


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Uncategorized

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

Previous Posts
%d bloggers like this: