Fundraising Update

There is still time to make a basket or attend the Spring Basket Party on Friday April 18th from 6:30-9:00pm at WR Odell Elementary in Concord. We have some great Door and Grand Prizes including a BMX bike, a Wii game system and a Bosch Table Saw. Baskets will be accepted all the way up to the 18th, but we must receive them by the 10th to be included in the program for the evening. Please contact us at 704-262-9396 or Pam Barnard at 704-305-6291 with questions about baskets or tickets.

Wednesday May 7 from 5-7pm. Please join us at Forest Hill United Methodist Church in Concord for a Spaghetti Supper. The Methodist Men’s group has agreed to share proceeds from this event to help support us in our fundraising. $5 will get you all you can eat homemade spaghetti, salad, drink, and dessert. Big thanks to the church and our friend Monica Hughes for helping arrange this!!!!! I did tell them that we will need to keep an eye on Brandon to keep him from eating up all the profits!!!!!

ourboys 5k festival is coming togethe nicely for us. We have picked up several sponsors that we would like to recognize. Please stand and applaud our friends at J and B Development, University Pediatrics, Nomad Aquatics Center and Advanced Health and Pain Relief Center. Also providing support are WSOC and WFNZ radio stations. Join us from 9am-12pm at Harris Rd Middle School for this event where you are sure to have a great time!


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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