New look

Thanks for visiting the new look site.  I would like to publicly thank Dane and Monica Hughes for graciously allowing us to reside on one of their servers since the beginning of our site.   We would also like to thank Justin Moore at www.sublmnldesign.com for designing our initial website.  We have moved to this format to allow more frequent changes to the site.  We hope that you will subscribe to the email alert and come back often!!!!!   Please notice our pages near the top of our home page.  We have added one spot for you to go to get information about ourboys running team, ourboys 5k, and other events that we support and attend.  Please let us know if you have questions or comments….we would love to hear from you!   Chawk328@ctc.net.

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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