Ups and downs

We had a fun night tonight, when I got home from work I took Jeremy to CubScouts, we went to Classic Art Inc in Concord.  You may have heard me mention Classic Art before, Joe Panko is the owner and he has graciously provided auction items for me on a couple of occasions.  He did a presentation to the scouts on collecting and baseball card collecting in particular.  Then we got to spend some time with Commanche or newest addition to the family.  Cubby doesn’t know what to think, but he is not aggressive at all.  The puppy is verrrrrry cute. 

I just finished browsing the latest Lighthouse, a  BDSRA publication for bereaved families.  We have lost 35 children this year to Batten Disease…………….35 to many in my opinion.  We have got to find a cure for this  damn disease………

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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