Going to the Big D

Visiting Dallas tomorrow for a BDSRA Board of Directors meeting on Saturday and Sunday.  I am kind of disappointed to be leaving Charlotte.   There is a winter storm warning for tomorrow afternoon and Satuday here and I love to play in the snow with Brandon and Jeremy when we do get enough accumulation.  I would really love to see the puppy play in it for the first time, aahhhhh but duty calls.  I am very excited about the things that we have accomplished over the last couple of years as an organization, but I know there is much to be done……….


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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