Keep fighting

These type of stories are why we as Batten families never give up……..,0,1002344.column

Our kids just want to live and they fight harder than we ever dreamed of when we were growing up.  I am so proud of John Sikorra, Brandon and Jeremy Hawkins and all Batten kids out there.  

Keep fighting, keep fighting.


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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