Please take a moment to share this press release with your local media highlighting Batten Awareness Weekend. The first weekend in June has held this designation for us to promote Batten Disease Awareness and it has grown each year in scope. A personalized letter to the editor of your local paper is also a great way to make it more meaningful. Thank you for your continued support in our fight to find a cure for this horrible disease!!!!
Batten Awareness Weekend
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