Thank you to my friends and family for your help in spreading awareness on our Batten Awareness Weekend. The BDSRA website got 3 times the normal weekend traffic and had over 6oo hits from two referrals:
We as affected families can’t tell you how important it is for people to hear about Batten Disease. A prospective donor has to know what it is before they are compelled to donate to our cause. Thank you, Thank you, Thank you!