Batten Awareness Weekend a success!!!!

Thank you to my friends and family for your help in spreading awareness on our Batten Awareness Weekend.  The BDSRA website got 3 times the normal weekend traffic and had over 6oo hits from two referrals:

Top Referral source: (402 visits from source)
Second leading Referral: (229 visits from source)

We as affected families can’t tell you how important it is for people to hear about Batten Disease.  A prospective donor has to know what it is before they are compelled to donate to our cause.  Thank you, Thank you, Thank you!


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Batten Disease

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