School’s out for summer

A quick end of year update from the Hawkins household.  We are still seeing some potential seizure or behavior related activities with Brandon.  He was fine when he got on the bus today and within 1o minutes we had his IA Jennifer calling asking if he had a good morning because he was very lethargic, eyes closed, and ended up laying down on the floor for a few minutes.  She called me back 10 minutes later and said he was fine.  He is still asking when his new wheelchair will be coming, although we will try not to allow it to be used unless necessary.  Jeremy has continued with losing the eyesight, but as with Brandon they have good vision days and bad vision days.  We shall hit the pool with full force tomorrow and hopefully that will cure any hangovers from not going to school.

Wanted to share a few recent pictures which have become favorites already.

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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