Very long day  today…..gotta love Monday’s.  Leave it to my boys to bring it all into perspective.  Nice walk with the dogs and Jeremy after dinner(Jeremy lately has been wanting to go with me when I take the dogs in the evening) when it was time to go to bed Jeremy yells down the hallway “Good night Brandon,  LOVE YOU!”  Doesn’t get much better than that……..

Another blessing has come our way thanks to friend Erica who has a very talented friend ithat has found it in her heart to make a special trip to Concord NC all the way from IN.  Check out her blog posting for further details, and make sure you click on the link to check out the photos on her website.  Thanks Jaime!!!!

We are very truly blessed, thank you Lord!


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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