BDSRA Public Service Announcement

These are not actors.  These are real people who are dealing with and have dealt with Batten Disease. Please take a moment to help us raise awareness by watching this short video and sharing with your circle of influence.

This comes out with perfect timing since the annual BDSRA conference begins next Thursday evening in Oak Brook IL.  Please keep our families in your thoughts and prayers as they travel from across the world to be there.



I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Uncategorized

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

Previous Posts
%d bloggers like this: