A perfect day

“You can’t live a perfect day without doing something for someone who will never be able to repay you.” – John Wooden

I came across this quote the other day and I am not even sure that John Wooden said it, but it sounds like something he would say.   I can’t get it out of my head.  I think about big things that we have been blessed with  like our Make a Wish trip.  I think about small things like a dinner brought over by friends.  I think about the hundreds of people who have taken time from their lives to volunteer at our events, attend our events and just give a kind word in passing.   I think about the prayers we have received over the years.  I think about the teachers that have been so kind, understanding and willing to help.  I think about the coworkers at our workplaces that gave a smile and said good luck.  I think about every time someone asks “How are the boys?” and when I don’t know what to say they understand.  I think about all the blessings that we have received from family, close friends and complete strangers.   I think about all this and I wonder “How can I ever repay all these people?”  You know what?  I can’t.  But I can  say thank you in as many ways as possible.  Thank you for being there for the Hawkins family, we can NEVER repay you for your thoughts, prayers, time, energy and kindness.  Thank you for helping us find a cure for Batten Disease one day at a time.  Thank you for understanding when I cry, thank you for putting up with my sometimes weird sense of humor. Thank you.  Just thank you.



I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Batten Disease, Just life, Make a Wish, prayer, Thank you, Uncategorized

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