Question of the Day

Brandon at dinner table last night out of the blue:  Daddy?

Me: Yes Brandon?

Brandon: When are they going to find a cure?

Me: For Batten Disease?

Brandon: Yes

ME: UHHHHHH, I don’t know son, hopefully soon.

Brandon: Oh……..

Somebody take that dagger out of my back…….

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About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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