Question of the Day

Brandon at dinner table last night out of the blue:  Daddy?

Me: Yes Brandon?

Brandon: When are they going to find a cure?

Me: For Batten Disease?

Brandon: Yes

ME: UHHHHHH, I don’t know son, hopefully soon.

Brandon: Oh……..

Somebody take that dagger out of my back…….


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Uncategorized

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

Previous Posts
%d bloggers like this: