More seizure trouble

Brandon had a seizure at school on Wednesday, this coming less than a month after upping his dose of Keppra to the maximum.  Our Dr agreed that it was time to add an additional seizure medicine……………………………


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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One comment on “More seizure trouble
  1. Debbie says:

    I wanted to stop by and thank you for visiting my blog. I personally can hardly wrap my mind around Batten Disease, but I know it has been very difficult for my friends. It saddens me to know your son’s seizures seem to be getting worse. My prayers and thoughts go out to the entire family.

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