ourboys 5k update

It’s almost time for our 5th annual ourboys 5k, if you are planning on running or walking on Saturday go ahead and sign up now, what are you waiting for?!?!?!?!?  http://www.sportoften.com/events/eventDetails.cfm?pEventId=6343

Another round of thank you’s to our sponsors:  Team Carneglia Real Estate, Defeet, DDI Promotions, Blu Energy Drink, Ryan Foot and Ankle Clinic and our timing company On the Mark Sports.

Special thanks to Harris Road Middle School, Kevin Brown at Team Graphics, Cindy Mora at Cindy’s in Stitches, Andy Brown our Volunteer Coordinator and Jeff McGonnell race director and “Loopy” ultra marathon runner extraordinaire.  Also a big thank you to the staff at BDSRA(Lance, Adina, Eric, Lisa, Donna and Ann) for all their support for this event and for our family.

Please check out our friend Noah Coughlan’s website at www.battenjourney.com.  Noah left Oceanside, CA on February 28th and is running across the USA to raise awareness for Batten Disease.  He is currently in Texas and plans on arriving in Jacksonville, FL on July 9th.  He uploads videos to youtube everyday documenting his journey as well.

The countdown is on and we hope to see you on Saturday!


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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