Let’s Get Loopy for Batten Disease Awareness

The first weekend in June is  National Batten Awareness Weekend, and we traditionally do some type of event to try and get people talking about Batten Disease.  With that said, please join us at the Davidson town green this Saturday June 4th for a great lineup of music, some great fun and a Loopy running performance.  Our friend Jeff McGonnell, ultra marathon runner extraordinaire,  will begin running at 11am Saturday in a .10 loop.  He will be running for a continuous 24 hours and has promised to wear a costume of your choice for a donation.  You will also be able to run laps with Jeff for a donation as well.   If running is just not your thing we will have some great musicians entertaining all day long.   A huge thank you to Jeff for coming up with this idea executing the planning of this event(and to his committee of Jayne, Courtney, Steve and Alex).   http://loopy4acause.blogspot.com/

Saturday June 4
Billy Jones 10:30 – 11:30
Chas Willomen 11:30 – 12:30
Langlee 12:45 – 1:45
Rob McHale  2:00 – 3:00
Mack Russum  3:00 – 4:00
Rusty Knox Trio  4:00 – 5:00
Rick Spreitzer  5:00 – 6:00
Jana V  6:00 – 7:00
Ellie & Michaela  7:00 – 8:00
Sunday Union  8:00 – 9:00

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Uncategorized

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

Previous Posts
%d bloggers like this: