Moments like this

are what I really appreciate as a father these days.  This is before the race and Jeremy was a little nervous and excited.  He is so ULTRA competitive that he always wants to win at every thing he does.  I am a little saddened because he got so very tired by the end of the 5k that I don’t think I will be able to let him walk or run any more of these races, but I hope to continue participating with him by pushing him in a chair.

Huge thanks to the folks that put on Run the Creek 5k last Saturday for giving me the opportunity to make these special memories……..


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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One comment on “Moments like this
  1. alicia kayser says:

    You’re amazing!

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