Spring Break is here

The boys are on spring break this week, which is always fun.  Brandon is always saying “What’s next?” in trying to decide what he wants to do.  We have switched from Beyblades to older video games.  Caregivers get to play MarioKart and Mario Sunshine on the Gamecube…….They are cross eyed usually by the time I get home!  Big thanks to Crystal, Brendon, Madison and Matt so far this week for hanging with the boys.  They are asking a lot of questions about the 5k and hearing me on the phone making plans.

Knock on wood, we have had no seizure or behavior issues recently with the boys.  Just very noticeable decline in vision again for both boys but mainly Jeremy.

Please make plans to come out and say hello on April 28th if you can, we would love to have walk, run, volunteer, or just stop by and say hi!

Register: http://www.queencitytiming.com/search/event.aspx?event=7c52c883-f961-4317-9bb0-aa7a88958ba0.aspx

Donate: https://queencitytiming.com/Fundraising/?event=7529

Advertisements
About

I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

Posted in Uncategorized

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Previous Posts
%d bloggers like this: