24 Hours of Loopy, The Sequel

Can’t believe it has been a month since I last posted, and here I go promoting another great event for Batten Disease.  For the second straight year on national Batten Disease Awareness Weekend our friend and resident loopy runner Jeff McGonnell is taking on the task of running in circles for 24 Hours straight.   Boring right?  What if I told you he will wear a costume for a donation?  Better.  What if I also told you there will be an end of school movie, hint: Bueller?  Bueller?  Anyone? But wait there’s more……live music all afternoon from talented local artists like Billy Jones, Chas Willoman and Sunday Union.  Oops, I almost forgot, running alongside Jeff this year in 1-2 hour time slots are 30 or so of his most talented running friends!!!!!

Please make some time to come out to the green in Davidson and say hello, enjoy some music and maybe even make a donation to see one of your favorite runners in a ladies housecoat, a feather boa, top hat and many more!!!!!  Check out pictures from last year at: https://vimeo.com/25434713

Jeff begins running at 6pm Friday night, the movie starts at dusk.  Music begins on Saturday around 11am and continues all afternoon.  See the link below for guest runners and their time slots.


A HUGE thank you to the folks that have made this possible again this year.  I am sure I will miss someone but please know it was not intentional and we do appreciate all that you do.  Billy Jones coordinated the music, the entire McGonnell family(Jayne, Jeff, Mily, Selena and Ben), Sam Mishler at Niagara Bottling Co donated water for ourboys 5k/10k which we will also be using this weekend, ditto for the folks at Vitamin Water/Powerade.   ALL of our guest runners, THANK YOU, THANK YOU, THANK YOU for taking time from your schedules to come out and support our family and this cause.

Hope to see you Friday or Saturday!!!!  



I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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