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2014 Conference Video

Posted on August 22, 2014 by chawk328 — 3 Comments
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I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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3 comments on “2014 Conference Video”
  1. Tracy Kirby says:
    August 22, 2014 at 4:11 pm

    Thanks for sharing! I’m hoping everyone will share everywhere possible

    Tracy Kirby
    Administrative Manager
    1175 Dublin Road • Columbus, Ohio 43215
    Office: 614-973-6013 • Toll Free: 800-448-4570
    tkirby@bdsra.org • http://www.bdsra.org

    Reply
  2. Louis Comoz says:
    August 22, 2014 at 5:16 pm

    Thank you for sharing the video with us. Miss you all Lou Compoz

    Sent from my iPhone

    >

    Reply

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