2014 Conference Video


I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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3 comments on “2014 Conference Video
  1. Tracy Kirby says:

    Thanks for sharing! I’m hoping everyone will share everywhere possible

    Tracy Kirby
    Administrative Manager
    1175 Dublin Road • Columbus, Ohio 43215
    Office: 614-973-6013 • Toll Free: 800-448-4570
    tkirby@bdsra.org • http://www.bdsra.org

  2. Louis Comoz says:

    Thank you for sharing the video with us. Miss you all Lou Compoz

    Sent from my iPhone


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