Merry Christmas 2015

I have struggled to come up with the right words for this post all day long.  2015 has been a challenging year in our home for a variety of reasons, most of them completely out of our control.  Yet the overwhelming feeling in our hearts right now is gratitude.  Despite all the challenges it has been an incredible year, full of great memories and milestones. We have our faith, our family and an incredible community(both near and far) around us.  We don’t know what the future holds but we know that we will make it through.

Merry Christmas to you and yours, please hold your loved ones tight when you can, tell them you love them every chance that you have and have a wonderful 2016!!!!!!!

Chris, Wendy, Brandon and Jeremy



I am married to Wendy and dad to two boys Brandon and Jeremy with Juvenile Batten Disease, a fatal neurodegenerative childhood disorder. I am also active with the Batten Disease Support and Research Association.

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