Blog Archives

Punch in the gut

So today was hard.  My Batten family, I am sure, can relate to what I am about to say.  After Brandon turned 18 we had to apply for Social Security Disability for him as an adult.  Part of that process

Posted in Batten Disease, blind, Uncategorized

New Chapter

Hi all, I have done a poor job of updating ourboysjourney again but want to share the latest around the Hawkins home.   Brandon and Jeremy are both at Cox Mill High School in Concord.  Brandon is a senior and

Posted in Batten Disease, prayer, Uncategorized


With ourboys 5k/10k coming up in a few weeks we would like to fill you in on what’s been going on around here.  We are blessed to have friends and family who help us and support us in many ways.

Posted in 10k, 5k, Batten Disease

That’s a wrap for another year

It is difficult to put into words how draining and rewarding ourboys 5k/10k is to pull off, but I guess I will give it a try.  In the weeks leading up to the race I really don’t have much time

Posted in 10k, 5k, Batten Disease, Uncategorized

ourboys 5k/10k 2013 edition

Wow, I can’t believe it is only 6 weeks away!!  Once again we are gearing up for another special event.  These are always emotional events for us, and it is sometimes difficult to understand the different directions that your heart

Posted in 5k, Batten Disease, BDSRA, ourboys, Uncategorized

ourboys 5k and 10k 2013

Details are still being finalized but here is the information we have so far! The race will once again be held at Harris Road Middle School in Concord, NC for directions please use this link as Google Maps does not

Posted in 5k, Batten Disease, BDSRA, Uncategorized

Road race to fund Batten Disease research

Road race to fund Batten Disease research.

Posted in 5k, Batten Disease, BDSRA
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